In 2019, overwhelmed and hopeful, I began my Bachelor of Music (Music Education) degree at the Sydney Conservatorium. Since then, I’ve been making posts on this blog for various Music Education assignments, reflecting on seminars, learning guitar, playing gamelan, and the occasional bit of dry (but necessary) research.
This post, though, I’m writing just because I want to.
Halfway through this year – 2022, what would have been the final year of my degree – I had the privilege of doing three weeks of prac at Wilcannia Central School, a small school in far west NSW with an entirely Indigenous student population. My friend Jay and I received the warmest of welcomes from the school and local community, and I left Wilcannia with a renewed vigour for teaching, something I sorely needed at that point in my degree.
Then I returned to Sydney, and my body broke down.
Bedbound for days at a time, my sleep became erratic, my mind hazy with fatigue. This was not new to me, but what was new was the pain: the insistent, dull ache that burrowed its way into my muscles and tendons one day and never left. After a string of appointments, I was diagnosed with fibromyalgia, a disorder with an unknown cause and no cure.
I missed most of the final intensives. My final prac was postponed, rearranged, and then postponed again. Weeks away from finishing my degree, I was forced to admit that graduating with my cohort would be an impossibility. I discontinued all my units, the plan being to repeat them in Semester 2 next year, if my health allows.
If my health allows. I don’t know yet. That’s one of the things about chronic illness: when you first get sick, you have to get used to a whole new set of limits your disability imposes on your body. “Normal” things like household chores, study, work – even basic necessities like eating, showering, leaving the house – become almost insurmountable obstacles in the course of your day. Over time, you get used to your new boundaries, and your friends get used to the fact that you’ll get twelve hours of sleep a day and still be exhausted; that you need a walker or your legs will give out on you; that no, sorry, you can’t go to the party because you have a doctor’s appointment (oh, the endless string of doctor’s appointments!) that week, and one long outing a week is all you can do.
But your friends don’t see when you collapse in bed when you get home, too tired to move, but hurting too much for sleep. They don’t feel the constant weight on your chest and back, compressing your breathing. They don’t; they can’t. Empathy has its limits. You cannot feel someone else’s pain for them. It is the most isolating thing I have ever been through.
I am writing this post for a couple of reasons. One, because I want to tell the truth about my condition in all its ugliness. I am angry and sad to have fibromyalgia. I am disabled, and I do not want to be. That is the truth. But instead of shying away from the subject because it is difficult, I want to be loud. I don’t want disabled people to disappear, relegated to the sidelines of society, an unsolvable problem others are tired of hearing about and working around. I feel no guilt about inconveniencing the system, because the system was not built to keep people like me alive. Silence does not make change.
The second reason is a call to action. My fellow educators, and those patient enough to read this far: please don’t leave your disabled students behind.
No, let me rephrase that. Teachers, friends, you will leave your disabled students behind. You probably already have. There are kids in your classes who are undiagnosed, who are quietly struggling; kids who have visible disabilities, who are shunned by their peers; kids whose suffering leads to behavioural issues, who your colleagues dismiss as troublemakers and brats; kids who the school is trying to support, but whose families are doing them more harm than good. No disability is easy for an educator to work with, just as no disability is easy for a disabled person to live with. You will complain about having to make extra allowances and changing your programs and making your classroom accessible. You will leave the heavy lifting to the disability support staff, should you have them. Kids will leave school and become adults who reminisce bitterly about not receiving support when they needed it. And you will have failed those kids.
Because you are human. Humans make mistakes. Humans take the easy path, especially when they are overworked and underpaid. I have seen the daily struggle educators like you go through, trying to survive the piles of paperwork, the extra hours, the bureaucracy, the unreasonable demands. To ask you to go the extra mile on top of all that must seem like asking for the moon.
But I will ask anyway. You chose this career for a reason. Surely not for the money (what money?) or because yelling orders at kids makes you feel powerful (though I’ve certainly met teachers like that…), but because once upon a time, you wanted to make a difference. You wanted to work with young people, raise them up and believe in them, guide their path to success whatever that may be. Maybe that spark is gone, smothered by years of drudgery and bitterness. But maybe it’s still there. It’s to that spark I say this:
A disabled student is in your school for six, seven years tops. They will be disabled for a lifetime.
When they graduate high school, they’ll be eighteen. They’ll have sixty, seventy years of navigating the world as a disabled adult. They’ll likely have difficulties finding work, establishing relationships, getting support from a government that wishes they didn’t exist. And they’ll look back on their school days as their first taste of this world, the years that taught them one of two lessons.
Perhaps they learnt that nobody will look out for them, that they are an inconvenience at best, that their disability is their problem to deal with, that the world is cruel and harsh to those whose needs and abilities do not conform. Or perhaps they learnt that the world is all of those things, but there are spots of light – warm people who do their best to understand, to walk the difficult paths with them, to raise them up. That disability can feel isolating, but they are not alone.
You are powerful, educator. You get to choose which lesson they learn.
Which will you choose?


















